Are you 1 in 100?

Coeliac UK have an online petition underway, to lobby the government for earlier diagnosis for coeliac disease and dermatitis herpetitformis. So far they have just over 3,000 signatures – but that is less than 10% of coeliacs in the UK

Left undiagnosed coeliac disease can lead to serious complications yet four out of five people remain undiagnosed.

Please consider signing the on-line petition to add your name to the campaign calling on the Government to recognise the importance of early diagnosis and provide more appropriate training for GPs.

You can sign the petition here.

Self-testing for Coeliac Disease

This has been posted elsewhere (see for instance the CUK site, but here it is again: JRBiomedical has introduced the Biocard Celiac Test to let people self-test at home for coeliac/celiac disease with a pinprick blood sample – and the results are shown in less than 10 minutes. It is available at www.coeliactest.co.uk for £19.99.

Given that many people remain undiagnosed for months or even years, at that price it would be worth it. Of course, once you have the results, you should go to see your doctor anyway – and keep eating gluten until the doctor has confirmed the diagnosis. And if you have a negative result, but still have symptoms, then you should still consult your doctor. Bear in mind, too, that false negative results are quite common.

Anything that helps people eliminate these unpleasant symptoms from their lives should be welcomed.