New blog post: Are you deficient in vitamin B6? http://www.free-from.com/blog/?p=126 2007-11-12

Have you got Steatorrhoea?

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If you’ve got it, you’ll know. Believe me, you’ll know, even if you don’t know what it is called. And if you’re here looking for help with this symptom - welcome!

Anyone reading this over their breakfast, look away now. Better, come back later, when you’ve finished.

steatorrhoea - colours I have known

You may remember that some time ago I posted a picture of the Bristol stool chart. (This is in fact one of the most popular pages of this site.) I was impressed when the doctor pulled this chart out, so that I could point to the product most like that of my one-year-old daughter, before she was diagnosed. OK, I can’t resist it … here’s the image again.

But I do remember thinking at the time, that what he also needed was the equivalent of a paint chart. When I was asked what colour were her stools, I resorted to looking around the room to find something that was the approximate colour. Turned out to be the fireplace. Look at the left hand end of this bar of colour …

steatorrhoea - colours I have known

Yes - very pale, and very distinctive! But I think there’s probably a range - I’ve seen stools anywhere along this range of colours before diagnosis. After diagnosis, then the colour range has been much closer to that of the Bristol stool chart.

So what was it?

This is steatorrhoea, which is an excess of fat in faeces.

The stool may float due to trapped air. It is also pale in colour (see my paint chart!), and there may be drops of oil visible in the toilet pan after flushing.

The reference documents say it may be foul-smelling. In my experience it has an extremely strong, very distinctive and vile smell. ‘Foul-smelling’ is a very mild description …

Steatorrhoea is a classic symptom of coeliac disease. It’s not the only one, and you can have coeliac disease without this symptom, but if you have it, you should get checked out by a doctor.

Apparently, in coeliac disease the level of fat excreted is usually between 25 and 30 g per day. In case you were wondering, the normal level is about 9 g per day. And checking the level of fat in the stool is, indeed, one of the screening tests that can be run.

We dutifully collected a stool sample to be sent off to the lab all those years ago, but it must have been quite obvious from the moment I pointed at the very pale beige of the fireplace, that something wasn’t right.

OK, you can go back to your breakfast now …

One small step for independence

My older children, particularly middle daughter, have taken to walking to the farm shop, down the road, to buy small items (milk, eggs etc). I think this is great … not only do I get emergency supplies bought in when needed, but it is also good independence training. And because we live in a small village on a main road, there isn’t anywhere else they can go. We have the school for the surrounding seven villages, a church, a pub and the farm shop. There are the fruit fields in summer, where we can go and pick-your-own soft fruit, (or fish for trout, if we felt like it), but really, that’s it. No playgrounds, no pavements (trans: sidewalk), no buses, no post office.

Today, my eldest (coeliac) daughter decided to go to the farm shop with her friend, who was visiting for the day. It’s been a very hot day, and they wanted icecream. (The farm shop sells a variety of different flavour icecreams, as they do round here). For the first time, she decided that she could take one of her own gluten free cones, and ask to have it filled.

And she did it. Apparently the girl behind the counter (from the local town) was a bit surprised, and thought my daughter had taken the cone from the pile available for sale, but she managed to get through that and order icecream.

Such a small thing, and yet usually she relies on us to explain, and to ask, since she is quite shy …

Independence training - a wonderful thing.

A week of gluten free awareness

We were eating lunch today, and discussing a question out of the Question Box:

If you could create a new holiday, what would it be and how would people celebrate it?

We had the answers you would expect:

  • from middle child: Give Me Chocolate Day
  • from youngest: Candyfloss Day
  • from husband: Cunning Plans Day, celebrating inventions
  • from me: Community Day - day off work to do voluntary work

But from my eldest daughter (our coeliac):

I’d have a week when everybody had to eat gluten free, so they could see what it was like.

Just when you think its all fine …

Did you know it is Gluten Free Awareness Week here in the UK?

Fig and Ginger Goats Cheese Tart

A few weeks ago, I was lucky enough to win a jar of McQuade’s Celtic Fig and Ginger chutney from Blake Makes. If you’ve not been over to visit there yet, you should visit at least once. It isn’t a gluten free blog, but it is definitely a foodie one.

Fig and Ginger ChutneyThe task was to suggest how you might use this chutney in a recipe. I was rather surprised to see in the comments that some people were unfamiliar with chutney, but there were many excellent and mouthwatering suggestions. This was mine:

Lucy:

I think goats cheese too.

I’m thinking pastry shell (gluten free, naturally), layer of fig and ginger chutney across bottom, goats cheese either sliced or shredded and sprinkled, depending on whether it is a hard or soft cheese, and then cooked in the oven to crisp the pastry and melt the cheese.

Or (perhaps and, if I’m being particularly greedy), fig and ginger icecream, served with (gluten free!) ginger biscuits or flapjack. Depending on the size of the chunks in the chutney, might need to blend the chutney a bit first …

And Lo: a jar of chutney arrived on my doorstep at the end of April.

For various reasons, it took me a while to complete my mission, and actually to cook something with this chutney, but I’ve done it. I used Lifestyle ready-made gluten free pastry rather than making some from scratch, because it was there in the freezer, and needed eating, and also - if I’m honest - because I’m run off my feet with work, and didn’t have time to make my own pastry. But I think a few shortcuts are OK occasionally.

Then I spread the chutney liberally across the bottom of my pastry shell. Not too liberally - I wanted to reserve some to taste separately! - and sprinkled goat’s cheese across the top before cooking it.

It was absolutely delicious. The chutney was also delicious with cheese and crackers. So good, that there’s none left to try the icecream out, but I do think this would work, because of the sweet and sour virtue of good chutney. My husband - a connoisseur of good chutneys - was heard to say (through a mouthful) that it was class. He may have said that it was even better than my own damson chutney, or my cranberry and shallot chutney, but I’m pretending I didn’t hear that.

It is truly a great chutney. Perhaps not, as their publicity says, reminiscent of the Scottish Highlands (figs just don’t grow that far north), but really good. Guys, why aren’t you selling it here? No, really - why not?

(I notice, incidentally, that the recipe at the top of the McQuade’s site is also a goat’s cheese and pastry one, so clearly great taste-buds work alike.)

Gluten Free School Trips

You may remember my discussing the need to explain to school about the requirements of the gluten free diet, to make it easier for my daughter to go on school trips - or other trips without me.

I thought I’d provide the letter that I sent before her most recent school trip, in case it is useful to anyone else. I wanted to explain to school not only what she could and couldn’t eat, but also what the likely effects would be.

Do feel free to download, cut and paste and generally reuse for your own purposes, but bear in mind that this was written for the UK, so you might need to double-check some of the detail.

Letter explaining what a coeliac can eat

I’ve stripped out her name and our contact details, for obvious reasons.