There is a moving blog written by India Knight about children with special needs – you can find it at India Knight – inspired by her experiences with one of her own children, but which now covers a great many different areas of need.
A while back, she posted this article about coeliac disease from a reader called Caroline Maddocks.
The description of her daughter almost exactly matches mine – except that instead of reducing her diet to smoked salmon and strawberries, my daughter would only eat chorizo and grapes – and both were characteristic of coeliac disease. What is amazing is how long it can take to get to a diagnosis. We were lucky in that we have a great GP, but it still took months for all the tests to happen, and then to get a referral to a dietician. When a child is clearly ill, surely speed is vital …
I’ve written a book summarising what we’ve learnt over 20 years of dealing with the gluten free diet, and it might be just what you’re looking for. It packs the lessons we’ve learned into what I hope is a helpful and straightforward guidebook. It’s available on Amazon, as a paperback or for your Kindle…
Pratik Rach says
As India races towards achieving superpowerdom, its children are still far behind in terms of healthcare, education and other facilities. Children especially girls are faced with lack of educational opportunities, malnourishment, infant mortality and early marriages. Children are the future of a nation. For an emerging and developing country like India, development of underprivileged children holds the key to the progress of the nation itself. Education for underprivileged Children is the key whether we are addressing healthcare, poverty, population control, unemployment or human rights issues. Projects such as PRAD http://www.jaagore.com/project/policy-research-and-advocacy-division-prad work towards these issues and make policies and conduct research with relation to issues related to children. They need people who are techno savvy and who can do data analysis for making their projects successful and to put their processes in place.